Orphanews

Orphanet is a website specialised in rare deseases and orphan drugs. It is considered to be a really relevant organisation. In their French newsletter, they found it necessary to express a negative opinion on Wikipedia. In a way it is sad. It is sad because even when Wikipedia gives the best information on rare diseases, its intention is not to be a specialist portal for rare diseases.

Organisations like Orphanet should appreciate Wikipedia for what it is; a place where encyclopaedic level information is provided. Encyclopaedic information is limited and when an organisation is part of the Wikipedia solution, it may feature as an external resource.
Thanks,
GerardM